Boldly Bald

So, Brad and I did pandemic home haircuts yesterday, and somehow he ended up with more hair than me! But, seriously, I got tired of navigating around the bald spots, and felt like it would be easier to start from scratch than regrow a mullet, as my loss was on top and sides. This might be my only chance to rock a bald head, so we went for it !I feel free and wonderful.

What’s next

New MRI on Nov 18th

Follow up appointments with oncology team to go over new baseline MRI.

Physical therapy – working on my left glute strength with the goal of running in the next few weeks. Who knew that I'd be looking forward to running?! I did order these awesome custom Nike reacts for inspiration.

Occupational therapy – working on fine motor skills and shoulder stability.

Cognitive therapy – working on focus and finding my words while listening. Currently, one-on-one conversations with anyone but Brad are fairly exhausting.

Seizures and Fear

Wednesday 10/21 was my last day of treatment and I ended the day with a minor seizure. I didn’t end up in the hospital wondering what happened. The seizure lasted less than 4 minutes and I was conscious the whole time. Which is probably good in terms of severity but it’s the first time in all of this that I’ve been fearful during this experience. I don’t like that my independence could be affected going forward because of possibly more seizures. And, it pushes my driving out/resets the 6 months to April.

Not Drinking Right Now/Sobriety by choice

In addition to our mostly plant-based whole food diet, we have also made the choice to stop drinking. At the recommendation of a former colleague and bad ass cancer survivor, I started reading: “Quit Like a Woman: The Radical Choice to Not Drink in a Culture Obsessed with Alcohol” and it’s full of great information on not just navigating sobriety in a culture obsessed with alcohol, but also self-care, boundaries and general feminist bad-assery. Alcohol is literally a carcinogenic neurotoxin and the only drug that is readily accepted in our culture. It’s more acceptable to drink ethanol with our friends to unwind, celebrate, drown sorrows than it is to choose not to.

Golden Girls Update

The girls have been fully transitioned outside and love their home.

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