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What a Year We've Had.

  • Writer: Katie McMurray
    Katie McMurray
  • Jun 23, 2021
  • 4 min read

I woke up in the ICU,


ICU Doctor: Have you had a seizure before?


Me: I had a seizure?! Does my husband know?


ICU Doctor: Yes, he called the ambulance.





Post-Brain Biopsy - Being awake as they drill into your skull is surreal.



Meeting the Duke oncology team. - I have a grade 2 astrocytoma, which they are going to treat like a grade 3, since I am young and will likely respond well to treatment, in Charlotte.


Plan for brain radiation and fitting for my battle helmet - This photo was for the fitting when they definitely didn't tell me how tightly this thing would clamp down around/over my face for my 6 weeks of brain radiation.






Boldly Bald. And then I asked Brad to shave my head, because of my bald spots from radiation.





Goals for my next trip around the sun.


Power of the Present - This breath, This Moment.


Real Talk - I can't sing anymore. And I feel like I communicate a bit differently. I'm learning to embrace the new me.




Learning empathy for anxiety sufferers. And, seeing my parents after over a year apart.


I'm slowly learning to manage my energy, but usually the hard way.


Other Lessons Learned this Year:


- If you don't have your health, nothing else can matter in your life.


- We don't have control over what happens in this life - especially seizures (2 on Christmas Day?!)


- Embrace the life perspective shift. Even if it turns life sideways, there are benefits of seeing things from a new angle.


- Your situation could always be worse. You don't need to look very far to find someone who would look at your problems and consider them blessings. Find the gratitude in every thing.


- Learn how to meditate or calm your nervous system with breathing. If I'm on my game to get myself in the right headspace, I can do about 5 rounds of breathing (4 in, 4 hold, 8 out - 5 times) and I can feel totally different.

- Make sure you value and keep your healthcare plan up-to-date.


- Have an emergency savings. At least 6 months of living expenses or more, if you can swing it. This will make everything less stressful.


- Authentically build your personal network. Don't just wait for these people to check in on you. Everyone has stuff going on in their lives. Yes, you have cancer, but your friends and family are still having babies, buying homes, and getting married/divorced. You will really see who is there for you in these situations and people will surprise you - both for the good and the not-so-good.


- ongoing lessons/work in progress - talk to yourself like a friend.


- Make sure you like what's on the inside of yourself. The outside may change/deteriorate quicker than you anticipate.


- Don't just diet and look at what you eat for body composition or looks - think about how you are feeding your body for cellular health - we only get one crack at this!


- Work is important, but maybe not in the way that we think. If I were hit by the garbage truck tomorrow, I could easily be replaced at work and the world would keep spinning. What is not replaceable are the personal relationships that you garner through your work. Some of my former and current colleagues have been the most supportive people in my corner, as well as donors with whom I've had the pleasure to work.


- The little things are the big things: dinner on the porch, a phone call from a friend, a hug from someone you haven't seen in a year, sitting outside with our chickens, eating food that we've grown in our garden


- Make sure you align yourself with a true partner


Side note of Importance:


This guy is the greatest partner on the planet.


I loved him so much before all of this, but we've grown even closer this year.


He's taken up the slack around the house, become an excellent chicken dad, finished his PhD, taken me to the bathroom when my left leg didn't work well after seizures, made almost all of our meals, started building a financial literacy and well-being program at Charlotte (doing the work of about 3 people), takes care of our lawn and garden, reads to me, meditates with me, hangs out with me while I ride the peloton and stays nearby when I shower in case of seizures, cheerleads during my treatment weeks, rubs my back when I'm puking in the middle of the night (he'd be holding back my hair, if I had enough).


As you can read, the list is long and varied. But, damn, if he's not the coolest (and the cutest).




 
 
 

2 comentarios


cleowid
24 jun 2021

The grace and humor you show are unbelievable. you do have a true partner and you will be stronger because of it. Stay strong and know that, we don’t know each other very well, but i am cheering you on and my phone is always on. PS. You have chickens?

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mcfamm
23 jun 2021

When we turned in last night and I laid my phone beside the bed I thought of “that call” from Brad one year ago. He said you had a seizure, were in the hospital and undergoing testing. A parent’s nightmare. (Of course as a Mom I wanted to get in the car and help take care of you even though there was little we could do). Little did we know how long it would be until we could see you, hug you, hug Brad. It has been easily the toughest year of our lives. I wish I could have taken this tumor and placed in my aging, much less vital brain. Lol. I really doubt that I could …

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